Day 12: More Baby Steps

It’s been a long day, so I’ll keep this short, but I know people like to keep their eye out for daily Ambrose updates, so here it is!

Honestly, there’s not too much news. The biggest thing is that we’ve got him down to a 2 on the oxygen flow. The decrease is going to be pretty gradual from here on out. We asked today what flow he’d need to be on in order to come home on oxygen (not ideal, but a possibility) and the answer is, something below .25. So we’ve got a ways to go. The doctor estimates we could be out within the next week or two.

Which is sort of crazy to me. I feel like our lives are in limbo right now, and that it’s never going to end. But Ambrose is doing great, and he is going to come home with us some day. But that day feels like it will never come. It’s sort of like when I was pregnant: I thought I would never be un-pregnant. I knew logically that something had to happen, but I couldn’t imagine that day. I was going to be the 40-year-old with a 10-year-old fetus just chilling away. (Speaking of, the cartoon below offered me a much-needed laugh on a day when I was absolutely desperate and upset about the fact that I was still pregnant.)

Anyway. As for the breastfeeding journey, we had a pretty successful evening feed! He latched on and sucked away, on and off, for what felt like a few minutes, which is much longer than he’s been doing in the past. I’m not actually sure he got much to eat, but progress is progress. The nurse said she estimated 10 mls, based on his residuals, which is something I don’t even know how to explain, on top of the fact that I don’t know how she got that number. But okay! I’ll take it!

I asked the doctor about bottle feeds during rounds this morning, and she said she’s not ready to start them just yet. We’ve only just started trying with the breastfeeding; additionally, she said the high flow somehow makes it difficult for him to coordinate the suck-swallow reflex, and so…um…yeah. It all made sense when she told me this morning 🙂 In any case, we’re going to keep working on breastfeeding only for a few more days before we consider switching to bottles.

This has gone on longer than I was planning. It’s time for bed! I’ve been very tired, but I know I face a new level of tired once we finally take him home. Which, yes, will eventually happen. One day at a time. Chug chug chug, puff puff puff.

P.S. If you’re wondering what’s going on with the hat in the photo up above, the front desk of the hospital has hats you can just…take, I guess? I’m assuming they’re made by volunteers. So I grabbed this one because it looks similar to a hat Dad has. That face is just priceless, no?

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3 thoughts on “Day 12: More Baby Steps”

  1. Yes that face is priceless and changing! Love the hat.
    It is all so complicated and such a blur for you right now but just as you said it will change and you will be bringing him home. Keep on keeping on Mom. Remember you are healing too.

    Here’s my verse for today I’m sharing.

    Enter His gates with thanksgiving and His courts with praise; give thanks to Him and praise His Name. For the Lord is good and His love endures forever; His faithfulness continues through all generations.
    — Psalm 100:4-5

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