Our Big, Scary Day
Today has been very hard for me to get through. Which I guess makes sense — I’ll have good days and bad days as things change with Ambrose.
I took the morning off to stay in bed and doze, which was nice, but also meant that I missed his alert period in the morning. Apparently he was wriggling all around and had his eyes open again. He was even coughing a little, which is a good sign for what’s going on with his lungs.
But then he had to go down for his MRI. We did the MRI! Still, it’s hard not to be worried for him. They had to put him back on the ventilator just for the procedure, and also had to put him under heavy sedation. So when I finally did go up and see him around 3 p.m. he was completely still again, with that ventilator back in his mouth. Poor kid. It felt like a big step in the wrong direction.
The MRI wasn’t the only thing that Ambrose had to endure today, though. He also had to get a new PICC line installed — his kept clotting up, which is no bueno. This time they installed a pediatric-sized PICC line, which means a bit more circumference and less probability of clotting.
Finally, Ambrose had to get a lumbar puncture — think epidural, but lower down with no risk of paralysis. This was to test for meningitis. It’s a routine thing on the floor, and basically tells the doctor whether he needs to keep Ambrose on antibiotics for 21 days as opposed to 7ish. It will probably come back negative. But it was just one more scary thing we had to go through today.
So the last several paragraphs have been very negative on my part, but it’s how I’ve been feeling all day long, and I want to be honest about everything, including my emotions. If you’ve read down this far, you’re in for a break. We got the preliminary MRI report. It was the best report we could have possibly received — zero abnormalities.
We are rejoicing at the news, but! It’s important to keep a few things in mind. We’re not quite out of the woods yet. The results still need to be interpreted by the neurologist, who will consider everything in conjunction with the abnormal EEG and how he’s been doing since he arrived.
But your prayers have been working. Ambrose is doing as well as we could have asked for. He’s a sweetie, and it’s so hard for me to leave him every night. I know my guy is a fighter; this just seems to prove that.